Pneumonia Fighting Machine

Caden using The Vest by Hill-Rom to fight pneumonia

It appears that Caden is wearing some sort of NASA space suite or maybe part of one fo those G-Suits that fighter pilots wear. No. Caden is not going to be the next person to walk on the moon. At least not at this point in his life. The machine that Caden is attached to is called The VEST® by Hill-Rom. Caden was diagnosed with Bronchiectasis a while back and The VEST was prescribed to help Caden keep his airway clear. Bronchiectasis is one of the conditions that The VEST.

This machine sends pulses of air into the inflatable vest and that creates a vibration on Caden’s torso to help break up potentially infectious mucus in his airway and lungs. Caden uses The VEST about 40 minutes per day when he is well and even more on days when he is battling a diagnosis of pneumonia like he has had this past week.

Caden is doing better in recent days but the fevers and need for oxygen seems to come and go. Caden takes it all in stride. He has got accustom to the pain that his little body has to endure on a regular basis as a result of medical complications caused by 22q11.2 (DiGeorge Syndrome).

This is just one of many pieces of medical equipment that Caden uses regularly.  When we travel and stay over night somewhere we have a special additional list for Caden. In addition to clothes, shoes, toiletries, and The Skunk, Caden’s list of medical gear includes:

– Feeding Pump
– Feeding Pump Bags (1 new bag per day plus a few spares)
– Formula (6 – 8 oz cans per day)
– Syringes for giving water and medication
– The actual medication (some require refrigeration)
– Suction Machine
– Oxygen Tanks and/or Oxygen concentrator/generator machine
– Oxygen canula and mask
– Pulse Oximeter
– Thermometer
– Spare G-Tube button
– Braces for his feet
– Bed pads
– Chargers for everything electrical

If we fly then things get even more complicated. We have a trip planned in a couple of months and we are going to have to arrange for empty oxygen tanks to be replaced with full ones while we are on the road. We can only take so many in the car and still have room for our family of six and all the luggage that goes with a crew that size plus the list above.

Do you have a special need child? what unique equipment does your child require?

Babywise Friendly – Vegan Mint Chocolate Chip

Mint Chocolate Chip

NO! I have not gone vegan on you. I like the taste of most all animals I’ve tried and will continue to eat them. Regardless of the fact that this is a vegan dish, you have to admit that it does look good.

The post I am linking to over at Happy Healthy Mama is written by a food blogger who happens to be a Babywise fan. As part of the Babywise Networked-Blog week we all decided to give a little link love to a blogger who is a fan of Babywise, but does not necessarily bog about parenting. My blogging friend Valerie over at Chronicles of a Babywise Mom contacted Maryea over at Happy Healthy Mama and this is what she shared with us.

 

Date Your Children

Building relationships with your children requires an investment of time on your part as a parent. We also must be intentional about scheduling time with each child and making this time special to the child. Bethany over at The Graceful Mom tells us how she and her husband meet the relational needs of their children through dates.

Bethany’s post is part of the Babywise Networked-Blog week for July 2012. Members of this network of blogs include:

Valerie Plowman, Chronicles of a Babywise Mom 
Hank Osborne, Daddy Life
Maureen Monfore, Childwise Chat
Bethany Lynch, The Graceful Mom

Tips for reading aloud to your kids

Last week was Babywise Networked-Blog week. Each member of the team posted on a subject of their choosing. You can visit the member blogs by visiting the following links:

Today’s featured Babywise Networked Blog post is by Maureen Monfore of at Childwise Chat. Maureen shares her recent experiences with reading aloud to her son. My wife Sherry recently began reading aloud to our boys at bedtime on a regular basis. They have been going through a series by Jenny L. Cote that begings with The Ark, The Reed, and The Fire Cloud.

Maureen learned some valuable lessons and shared her tips for being more successful when reading books aloud to your little ones. Check out Maureen’s post titled Savor Books by Reading Slowly.

Keep It Simple This Summer

Josiah and Levi in a Pink Pool

We attended a birthday party this weekend.  My wife’s best friend from high school and maid of honor in our wedding was celebrating the 1st birthday of her daughter. It was a fun time catching up with old friends and watching the kids play. We were the only the only other family there with kids and they told us to bring bathing suites for our boys. We knew the pool would be just like to one our two youngest boys are shown playing in above. And our boys loved it. As I watched all four of my boys play in this little pink swimming pool it reminded me how the simple things really can provide a ton of fun. Our boys laughed and played for at least an hour and the water was no deeper than about four or five inches even when all of them were int he pool together.

Levi with Water, a Bowl, and a Spoon

Click for larger

The pink pool scene reminded me of some pictures my wife shared with me from earlier in the week. Our boys had been in the back yard playing in the dirt and getting filthy. She decided to hose them off before bringing them back into the hose. Then she accidentally discovered how much fun a two year old could have with nothing more than a plastic container, a spoon, and a toy truck. Our little Levi sat for over 30 minutes scooping water from this bowl and dumping it on himself and into the bucket of his little toy dump truck. It was truly amazing how content this little boy was with such simple things. It was sort of like the cardboard box thing. You know when you buy you kids an expensive big toy only to find that you could have gotten way with just brining home an empty cardboard box.

Sometimes the simplest things are the best. What simply things will be entertaining your kids this summer?

Classic Conversation

Busytown Airport
A conversation sparked between Sherry (Mommy) and Caden while they were looking at Richard Scarry’s A Day at the Airport.

Mommy: When you are bigger Daddy will teach you how to fly airplanes.

[Caden goes off to play for a few minutes and then returns to Mommy.]

Caden: I’m bigger now!!!

I LOVE THIS KID!

Caden

A Special Kid with a Golden Egg

Caden with Golden Easter Egg

Photo by: Virginia Gregg

Caden is a very special kid with a very popular egg. This egg contains a coveted wooden chip to get a free cup cake at a local gourmet bake shop. The irony in Caden finding this egg two years in a row is that he is the only kid participating who has never swallowed…not even his own saliva. In addition to numerous heart surgeries, back surgeries, and much more, seven year old Caden has taken all of his nutrition and hydration via feeding tube since birth. Just like last year, Caden gave the wooden chip to his older brother Riley.

Our family went to this annual Easter Egg hunt with some like-minded friends who all alumni of the GFI Parenting Ministry. This is the second time the local group of parents got together to have some fun over the Easter holiday.

Caden will have back surgery later this week to adjust the VEPTR rods (pictured below) placed in September 2010 to treat scoliosis.

VEPTR Rods - scoliosis

Your prayers for a rapid recovery would be appreciated.

Podcast Review of Monumental and the Easter Bunny

Daddy Life Podcast Episode 26I am here to help you Dads to be the parents that God intended for your to be.

Yes folks, Things are changing. Regular listeners may have heard from intro that I am changing things up a little. I am refining the focus of the Daddy Life podcast. Feedback continues to prove that dads are hungry for more encouragement on the parenting front. I almost exclusively get feedback from the non-technical content so that is where I am going to focus attention. There are plenty of dads out there covering the things that entertain. I am here to equip and challenge you to rise above the level of mediocrity in your marriage and in your parenting.

I will add tech tips in as subjects questions are raised. As in recent episode, I will only include a tech time in occasionally moving forward.

So what am I talking about this week:

This week I am going to provide you with an audio version of my review of Kirk Cameron’s new documentary titled Monumental: In Search of America’s National Treasure. Only you will get more in the audio because I can bring Kirk into from the trailers and let him tell you about the movie in his own words.

Before we get into that I want to talk about Easter. If you are new to the show you will know that I am very big on relationships. In particular I am big on telling the truth to your kids concerning things like Santa Claus and the tooth fairy. And you guessed it, I am in favor of keeping it real and true concerning the Easter Bunny. We do Easter baskets and egg hunts, but we tell our kids the truth about where the candy eggs and chocolate bunny’s come from. There is no magical bunny. Really! Seriously!

Also mentioned in this episode are some points from David Platt’s book titled Radical: Taking Back Your Faith from the American Dream.

Monumental is Highly recommended! DEMAND THE MOVIE

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Raising Teen Girls – Interview

This podcast episode contains an interview with a man’s man who is raising a house full of girls. Stacy Ratliff is an independent video consultant, producer, and editor with over 25 years of experience. He has produced a ton of content in the hunting/fishing/shooting categories over the past two decades. Stacy wrote and produced the ESPN Ultimate NASCAR 100 Defining Moments, The Bassmaster Yearbook, Driven to Hunt and much more that has aired on ESPN, the Outdoor Channel, and the Sportsman Channel. He has done camera work on the National Finals Rodeo, music videos, commercials, and industrial films. You can see some of Stacy’s video work on his Vimeo page.

Stacy is they guy who took Dale Earnhardt Jr on his first hunt. Stacy worked with the three time NASCAR champion Tony Stewart on a show title Driven to Hunt. in that episode they were working with some kids through the Make A Wish Foundation. Stacy has also worked with NASCAR legend Dale Earnhardt as well as Bobby Labonte, Terry Labonte, Kevin Harvik, Martin Truex and many more.

Stacy has been married to Anne for 21 years. They have three teen girls ages 14, 16, and 18. They are key couple leaders in the Growing Families International parenting ministry.

Stacy has recently moved into the role of being an independent video consultant, producer, and editor. I am sure he would greatly appreciate any work you can send in his direction. You can connect with Stacy on LinkedIn.

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Pinewood Derby Winners

Pinewood Derby WinnnersEvery one of the Osborne boys old enough to participate brought home a trophy this year. Two of my boys are in Cub Scout 458 that meets at Crowfield Baptist Church in Goose Creek, SC. Each year, like many Cub Scout packs, they have a Pinewood Derby race. This year we entered three of our boys Riley, Caden, and Josiah (JJ). Josiah entered in the sibling category since he is not old enough to be a Cub Scout yet.

They did a time trial and then the races were set up so that the cars of similar speed would compete against each other. I knew when I saw all three of my boys in the same race that they were all very closely matched. However when they raced I noticed that the cars finished 1, 2, 3 (youngest to oldest). There were only two other cars in the race with them since they were racing five lanes at a time. Each car got a chance to run each lane so out of fifty cars entered that created a need for 250 races. so that every care got a chance to run on every lane. Caden with his 3rd place overall trophyThen the prizes were awarded based on the best times for each car regardless of the lane they got that time from..sort of. Since all of my boys ran in the same race (obviously a fast heat), I got to see that JJ’s car finished ahead of his brothers in all five races. So it is impossible that Caden’s car recorded a time faster than JJ. However when the trophies were awarded Caden was given a overall trophy and JJ only won 1st place in his category (siblings). Riley was awarded 1st place in in the Bear Den category. I think the leaders decided to only award overall trophies to scouts since they are the official members of the pack.

Either way, my boys did not care. I was just glad that to see that they were happy for each others’ accomplishments.

Riley actually scored a sponsorship from DaddyLife.net.  I taught him, as best I could, how to negotiate for sponsor money on his car. I offered him $20 to be on the Daddy Life on a derby carhood but he insisted on putting a McDonald’s logo replica on the hood even though McDonald’s was not paying him to advertise for them. I paid Riley $10 to be on the hood. His grandpa also negotiated a spot on the back fo the car for his bible study for grieving family members called “Jesus Cares”.

Below are some more pictures of the boys’ cars and trophies. This was a fun adventure but a lot of work for Daddy. 😉 Hopefully Riley will be able to build his own car without assistance next year since we may be entering four cars if Levi is ready to be added into the mix.

Riley, car, and trophies.JJ and his trophy loot

HOEI-Daddy Life Racing Team Cars

In the paint booth the week before the raceI hope you enjoyed the pictures as much as we enjoyed racing today.