It appears that Caden is wearing some sort of NASA space suite or maybe part of one fo those G-Suits that fighter pilots wear. No. Caden is not going to be the next person to walk on the moon. At least not at this point in his life. The machine that Caden is attached to is called The VEST® by Hill-Rom. Caden was diagnosed with Bronchiectasis a while back and The VEST was prescribed to help Caden keep his airway clear. Bronchiectasis is one of the conditions that The VEST.
This machine sends pulses of air into the inflatable vest and that creates a vibration on Caden’s torso to help break up potentially infectious mucus in his airway and lungs. Caden uses The VEST about 40 minutes per day when he is well and even more on days when he is battling a diagnosis of pneumonia like he has had this past week.
Caden is doing better in recent days but the fevers and need for oxygen seems to come and go. Caden takes it all in stride. He has got accustom to the pain that his little body has to endure on a regular basis as a result of medical complications caused by 22q11.2 (DiGeorge Syndrome).
This is just one of many pieces of medical equipment that Caden uses regularly. When we travel and stay over night somewhere we have a special additional list for Caden. In addition to clothes, shoes, toiletries, and The Skunk, Caden’s list of medical gear includes:
– Feeding Pump
– Feeding Pump Bags (1 new bag per day plus a few spares)
– Formula (6 – 8 oz cans per day)
– Syringes for giving water and medication
– The actual medication (some require refrigeration)
– Suction Machine
– Oxygen Tanks and/or Oxygen concentrator/generator machine
– Oxygen canula and mask
– Pulse Oximeter
– Spare G-Tube button
– Braces for his feet
– Bed pads
– Chargers for everything electrical
If we fly then things get even more complicated. We have a trip planned in a couple of months and we are going to have to arrange for empty oxygen tanks to be replaced with full ones while we are on the road. We can only take so many in the car and still have room for our family of six and all the luggage that goes with a crew that size plus the list above.
Do you have a special need child? what unique equipment does your child require?