Bed Wetting Sheet Trick

Bed Wetting Sheet TrickBedwetting is a fairly common issue that many parents deal with at some point. Medical experts give assurances that this is nothing to be alarmed over. However, there are some logistics to deal with as a parent. You may have your child potty trained during the day, but they are not quite there at night and that can create messes. You have a few choices in terms of using night-time pull-ups or some kind of underwear cover. Many of these things are not 100% solutions. They may leak or you may simply choose to bite the bullet and move straight to cloth underwear at night without plastic pants. When/if you find yourself facing reoccurring bed wetting mess, the following will help you manage the clean-up process.

The picture above shows a bed made with an allergen cover on the mattress  four fitted sheets, and some protective pads between each fitted sheet.  The process is very simple. We learned this trick from many hospital stays with our son Caden. He is now eight years old (2013) and still has accidents. He has some pretty severe medical special needs that cause him to mess up sheets regularly. Even still, this trick is a perfect solution for average kids who simple have bed wetting accidents. Since we have made the bed with multiple layers we only need to strip off one sheet and the bed pads between the top sheet and the next layer. The pads that are still clean can be recycled for when you make the bed the next time. The soiled pads are simply tossed in the trash.

Short sheeting a bed the long way

I call this short-sheeting a bed the long way. The hospitals actually use a short (partial) sheet under the child’s torso with a bed pad under the short sheet. The short sheet can also be used in a hospital setting to help turn/roll a patient with little assistance.

How to short sheet a bed the long wayYou will notice that we cover the entire bed. This is because our son gets up and often spreads the mess to the end of the bed as he is getting up to come tell us he has had an accident. The two pads near the end are not soiled as often, but they do protect the other layers of sheets, and the allergen cover protects the mattress from accidents. Click for a closer look.  It is much easier in the middle of the night to simply strip off a layer and not have to worry about making a bed at 3:30 AM and then again at 5:45 AM. There have been nights that we have gone through three layers. And there are many nights when no layers are peeled off.

This last picture shows how many layers there are on this bed. You do have to stock up on some extra sheets and some bed pads, but that is a small price to pay in my opinion. You will notice that we use a solid color sheet on the bottom. That is our signal that we are on our last sheet and that there is nothing below it except for bed pads and an allergen cover. That means it is time to do laundry and remake the bed. The process of making the bed only takes a few minutes per layer.

Bigger is Better

4 Boys Plus OneThe Osborne family is growing. We expect the newest of the @OzzKids to join the fun in late July of 2013. The picture on the right was taken on Christmas Eve right after we announced to our family that we were expecting #5. We wrapped a small box with the onesie inside and then wrapped that box inside another and so on until we had it six or seven boxes deep. We passed the box in a circle while playing Jingle Bells (Levi’s fav) and the person holding the box when the music stopped had to open a layer. The news seemed most surprising for Caden and Josiah. You can see in the picture that Josiah was still in shock a few minutes later when we staged this picture. Caden is shown below with his initial reaction.

I think our extended family has finally come to a point where they are no longer surprised. Most thought we were crazy for having another child after Caden given the medical challenges we still battle with him. Caden was born with a deletion of his 22nd chromosome called 22q11.2 (DiGeorge Syndrome or VCFS). This has come with a host of open heart surgeries, back surgeries, exclusive tube feeding, and much, much more. While Sherry certainly does carry a heavier load with cooking, cleaning, laundry, and home schooling, the logistics of dealing with Caden’s frequent hospitalizations has really not changes much with the addition of Josiah and Levi. From the time Caden was born we had one child in the ICU and one at home that required our love and attention. Most Caden Reacts to hearing he will be a big brother againrecently we have just had multiple children at home when Caden has been hospitalized. I don’t expect the future to be much different with the new addition to our family when Caden has surgeries because we will still have children in two different places that need their parents. That has become a normal for our family that we have learned to live with and deal with fairly well.

So the long and the short is that we are very excited to be growing our family. We think that Bigger is Better and thank the Lord for blessing us with another child. We love all of the children God has blessed us with and can’t wait to meet the newest addition to the Osborne gang. As I said earlier, the emotions have been mixed within the family. As shown here, Caden was a little surprised, but pleasantly surprised. I have decided to start telling people that we are trying for 14 kids and that is what the number on my hat represents. It is actually the number of my favorite NASCAR driver Tony Stewart, but I thought that referring to the number as the target for number of children was a great way to stifle the comments about our big family. The idea was not my own, my neighbor came up with the idea during a New Year’s Eve Bingo party that Riley and I attended.

We hope you had a Merry Christmas and a trust that your New Year has begun with great joy and thanksgiving.

 

 

Sensory Bins

Caden with his sensory fidgetSensory items are very familiar to our family. As the parent of a special needs child with developmental delays, we get creative in terms of finding objects our Caden can use to fidget with. One of my fellow Babywise Friendly Blogger friends has posted some great tips for creating sensory bins for home. Bethany from The Graceful Mom has collected resources from other Babywise friendly moms in forums and shared them in a blog post today titled Babwise Week: Sensory Bins. Bethany reminds us that sensory items are great for all children in their developmental process. She uses then in her regular routine with her preschooler.

Just this week I was at the hospital for an extended day of appointments related to Caden’s surgery, actually scheduled for today. My smart phone battery was drained and I didn’t have my charger or my wife’s iPod touch for Caden to watch movies or play games. Instead I got creative by given Caden an oversize pink paper clip and a condiment cup from the cafeteria. He is shown in this picture playing with these items as he browses books in the pediatric Cardiology waiting room at the Children’s Hospital at he Medical University fo SC.

 

Happy Birthday Caden

Caden and his brothers on his birthday

Caden celebrated his 8th birthday in the hospital today. Caden has been hospitalized at the Medical University of SC for a week due to pneumonia. You can read all of the details of Caden’s condition on Caden’s Page.

Caden Puzzle Ball

Caden did have some fun today thanks to his brothers and some special gestures from hospital staff. This picture above is of Caden playing with his new Perplexus puzzle ball. Our friends the Bledsoe’s gave one of these to Josiah on his birthday and Caden has struggled with the complexity of that one so Sherry got a smaller easier one for Caden.

Caden in a turkey hat Dr. Birthday Clown

The left picture is of Caden with his turkey hat playing with his rescue helicopter delivered courtesy of the MUSC staff and Child Life group.  Our good friend Dr. Rusty Turner served as the unofficial party Dr. Clown. The picture on the right is of Dr. Clown Turner. He got a few smiles out of Caden and had the rest of us laughing. Below is a look behind the glasses and nose. He shared his clown secrets with us.

Dr Clown Secrets

Ups and Downs of Hospitalization

Caden was hospitalized with pneumonia a few days ago. I have been posting updates on Caden’s Page and on my personal Facebook page. At this point I do not expect to get a podcast episode recorded this week as planned. Please keep our little boy and our family in your prayers.

Halloween and Mediocrity

Halloween and Mediocrity EpisodeWhat do we do on Halloween instead of trick-or-treat, festivals, or costume parties? Our family enjoys each others’ company like we do many other nights throughout the year because in our family we believe that Halloween is Optional.

Ericka over at Large Families on Purpose asks if you are going to have a “Happy” Halloween? Her birthday falls on October 31 and that seems to make people think that she is an expert on the traditions of Halloween. And given her blog post and the number of positive responses, I would say that she is more than an expert than most on this subject.

Family Travel Adventures

Check out our Daddy Life Facebook Fan Page to see us kissing the yard of bricks at the Indianapolis Motor Speedway. We were traveling with our son Caden who has servere medical special needs related to 22q11.2 (DiGeorge Syndrome).

Mysterious backyard sound – What or who is that Owl talking to?

TECH TIME

Amazon Kindle store does not filter adult explicit and erotic book results from searches.

 

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Traveling with a Medically Special Needs Child


Caden

We have been home from our vacation for over a week now. This year’s road trip included six of us in a minivan for about 1600 miles of driving over a period of seven days. From a medical supply perspective, during the seven day trip Caden went through more than a dozen oxygen tanks,  received nearly two dozen tube feedings, and he spent a total of almost 5 hours on The Vest®.

Now before I go into more details, I want to give a disclaimer. I am not complaining about excitement created by missing oxygen tanks or all the gear required for Caden when traveling. I am trying to educate folks on the complexities associated with moving a medically special needs child around even though he does not “look special” to many people as seen above with the first fish he caught. One of our very dearest friends mentioned that we should not have that much to pack for this trip since Levi does not need a pack-n-play any longer. That last part is true, but most folks forget or don’t realize just how much gear goes along with being exclusively tube fed and having to be treated daily to prevent pneumonia and micro-aspiration due to the lack fo swallowing ability. Caden’s care is not as simple as grabbing a box of tissues and a suction machine like most folks see us do when we are out and about around town.

Medically Special Needs Child Travel Supplies

The medical equipment required for any over-night trip with Caden requires:

  • Tube Feeding Supplies* (Formula, feeding pump bags, a feeding pump with charger)
  • A spare G-Tube button
  • Extra feeding tube extensions
  • Syringes
  • A suction machine and charger
  • Oxygen Supply (1.5 liters during sleep hours)
  • Tissues
  • Bed pads
  • Spare linens
  • The Vest®
  • A jogging stroller (Caden does not have the stamina to walk for long, especially in the heat.)

The picture above may help put things into context. This picture includes most of the items listed above (minus three days worth of oxygen). This stuff took up the entire back storage area of our Kia Sedona van plus the floor space under Caden and Levi’s feet and the stroller when on the roof. The picture does not include any clothes or toys for Caden or anyone else in the family.  The basketball was added to the picture for scale.

Now that the trip is over I realize that we might have been able to carry enough oxygen to last the full week on the road. However, it would have been a tight fit. The fear of the unknown and the thought of a possible pneumonia while on the road made me very nervous about how we might get additional oxygen for Caden while 750 miles away from our home supply (over three dozen tanks in our garage) if needed. That is where the real story of the week came in.

I went ahead called the medical supply company that we use about three weeks before our trip. They are a national company and I arranged to have enough oxygen delivered to the Twin Lakes Camp and Conference Center in Hillsboro, IN to last us through the Labor Day weekend. We arrived on the Friday before Labor Day at approximately 3:30pm. I immediately checked in with the camp director to see if the oxygen had arrived. It had not. Caden uses about two standard E bottles (one shown in picture above) of oxygen per night when a concentrator/generator is not available.  I knew we did not have enough oxygen tanks to make it through until Tuesday when the medical supply offices opened back up for business. As I mentioned earlier, we could not comfortably transport enough for an entire week while traveling and so we only had a little in reserve after one night in a hotel already. I  realized that it was late in the day on a Friday of a holiday weekend and I tried to contact the office in Lafayette, IN where the oxygen was supposed to come from. I got nothing but a busy signal after about seven attempts within a 30 minute period. At this point it was a few minutes before 4 PM and I was about to start driving to Lafayette to pick up the oxygen tanks myself when I decided to make one last attempt to contact the medical supply company via their toll-free service. I was transferred to a lady at the Kokomo, IN office which was about 20 miles further away than Lafayette. The lady calmed my nerves and assured me that she would get oxygen delivered even if it had to be done the next day on Saturday…which was fine with me since we had enough to make it through one more night. She even gave me her cell number in the event we had trouble getting what we needed. Come to find out the lady had a delivery truck in Crawfordsville which was only about 15 miles away from our location at Twin Lakes and they had the tanks on their truck that we needed. She diverted them to Twin Lakes on Friday evening (arriving after 5pm) and they gave us the tanks we needed. The two guys on the truck were super nice and seemed genuine in their efforts to help in getting the supplies we needed.

JJ playing OctaballSo the weekend started off on a positive note even though we had a little scare. We ended up having an outstanding time visiting with friends from all over the country for the weekend. In addition to a variety of planned activities coordinated by our friends Joey and Carla Link the boys fished and played Octaball.

We continued our vacation with a tour of the Indianapolis Motor Speedway (IMS) and then spent two nights in the Cincinnati area so that we could visit the Creation Museum. These two stops rate a blog post each so I will save that for another day. The boys loved kissing the Yard of Bricks at IMS and we we all enjoyed our fourth visit to the creation museum where we got to meet Dr. Georgia Purdom and Buddy Davis.

 

 

 

Pneumonia Fighting Machine

Caden using The Vest by Hill-Rom to fight pneumonia

It appears that Caden is wearing some sort of NASA space suite or maybe part of one fo those G-Suits that fighter pilots wear. No. Caden is not going to be the next person to walk on the moon. At least not at this point in his life. The machine that Caden is attached to is called The VEST® by Hill-Rom. Caden was diagnosed with Bronchiectasis a while back and The VEST was prescribed to help Caden keep his airway clear. Bronchiectasis is one of the conditions that The VEST.

This machine sends pulses of air into the inflatable vest and that creates a vibration on Caden’s torso to help break up potentially infectious mucus in his airway and lungs. Caden uses The VEST about 40 minutes per day when he is well and even more on days when he is battling a diagnosis of pneumonia like he has had this past week.

Caden is doing better in recent days but the fevers and need for oxygen seems to come and go. Caden takes it all in stride. He has got accustom to the pain that his little body has to endure on a regular basis as a result of medical complications caused by 22q11.2 (DiGeorge Syndrome).

This is just one of many pieces of medical equipment that Caden uses regularly.  When we travel and stay over night somewhere we have a special additional list for Caden. In addition to clothes, shoes, toiletries, and The Skunk, Caden’s list of medical gear includes:

– Feeding Pump
– Feeding Pump Bags (1 new bag per day plus a few spares)
– Formula (6 – 8 oz cans per day)
– Syringes for giving water and medication
– The actual medication (some require refrigeration)
– Suction Machine
– Oxygen Tanks and/or Oxygen concentrator/generator machine
– Oxygen canula and mask
– Pulse Oximeter
– Thermometer
– Spare G-Tube button
– Braces for his feet
– Bed pads
– Chargers for everything electrical

If we fly then things get even more complicated. We have a trip planned in a couple of months and we are going to have to arrange for empty oxygen tanks to be replaced with full ones while we are on the road. We can only take so many in the car and still have room for our family of six and all the luggage that goes with a crew that size plus the list above.

Do you have a special need child? what unique equipment does your child require?